The Resources listed below are for informational purposes only. It is up to the individual and
their doctor to choose which information is best for them. If you have any additional ideas or
suggestions, please contact me at email@example.com so we can share them with others.
Newly Diagnosed Teleconference MSActiveSource NMSS National MS Society NMSS
FREE Live teleconference for people new to MS, featuring MS Experts. Ask, Listen, Learn
Click here for more information or type or click http://www.msactivesource.com/msavProject/msas.portal/_baseurl/twoColLayout/SCSRepository/en_
NMSS National MS Society NMSS
www.nationalmssociety.org/advocacy (Advocacy Program on Stem Cells, SSDI, etc.)
www.nationalmssociety.org/SSDI (Social Security MS Handbook)
NMSS MS Learn Online NMSS
http://www.nationalmssociety.org/MS%20Learn%20online.asp (Previously Recorded Webcasts)
MSF MS Foundation MSF
Making Strides: Perspectives on Living With MS, has provided up-to-date information and practical tips
for people living with MS, their families, and care partners.
New Reads From The MSF Lending Library
The MSF Lending Library delivers books, CDs, and DVDs to your door upon request.
You may borrow books at http://msfocus.org/publication_lending.php or by calling
MSAA MS Association of America MSAA
MS Center of FL Foundation MSCFL
Myelin Repair Foundation
Homecare Assistance Program
Assistive Tech. Equipment
Assistive Devices (Very thorough Listing) and Adaptive Equipment
Free phone/minutes to those that qualify - Ex: Household of 2 can have yearly income of $18,900. Remember only 1 per household
Adaptive Fishing Equipment
Bowling Ball Rowler
Stair-Climbing Wheelchair with 4 WD (Covered by VA)
The Orlando hospitality community welcomes guests with disabilities by providing a number of services to make you feel more at home
during your stay. Click to view a complete list of our members who provide services for guests with disabilities, or browse the
following areas of interest:
Home Modification Program
Brighter Tomorrow $1,000 Grant
NMSS Quality of Life $1,500 Grant
Center for Independent Living
Home and Vehicle Modifications
Assisting people with disabilities in making arrangements for home and vehicle modifications and
equipment. Our home and vehicle modification services provide funding for qualified individuals with
disabilities to improve access in their home or vehicle. Services may include building ramps, widening
doors, bathroom remodeling, and hand controls. Also provided are smoke detectors and doorbell signalers
for the deaf.
Local - Center for Independent Living of North Central Florida
3445 NE 24th St., Ocala, FL 34470 368-3788
For Home Remodeling, etc. Contact::
Larry Brown (c) (352) 816-0732 (Jean's Hubby) or
John Canney (h) (352) 624-3534 (c) (352) 454-1470 Disabled Acces. Spec.
Home Instead - Local contact: Jim Samuelson, 1411 NE 22nd Ave.,
Ocala, FL 34470 - (352) 622-6447
These senior home care services may include assistance with trips to the doctor, reminders to take the
right medication at the right time, meal preparation, light housekeeping, errands, shopping and even
Alzheimer's and dementia care. The result is companionship allowing seniors to feel safe and independent
while they age in place in the home they've lived in for years.
Integrity Home Health Care
(352) 804-3077 (Cell)
Country Side House Calls - They Bring the Clinic to Your Home!
www.countrysidehousecalls.com - Physician Assistant Making House Calls -
$49 for the first 30 minutes in your home. (Additional Services Extra) -
Treating Chronic Disease, Weight Management, Infections, Minor Injuries, Illness. Prescriptions, order and interpret diagnostic
tests and xrays, referrals and phone call follow-ups. Call (352) 854-4985 - They will give you paperwork to submit to insurance
company. Some insurance companies may reimburse you.
The Lexis-Light Is Easily The World's Lightest Scooter, Weighting Only 54 Pounds.
The Lexis Light Easily Folds Into A Small Compartment That Will Fit In The Trunk Of 'Any' Car
And Can Be Taken On A Plane As Carry On Luggage. Go to
MRI Diagnostic Fund
MRI Institute Follow-up
Talking Book (FL Bureau of Talking Library)
1-800-226-6075 - Ask for Michael Gunde
He'll send application and after having your Doctor sign for, you will receive Audio
Clinical Trials in Florida:
More Clinical Trials:
Copaxone - Manuf: Teva Neuroscience (Shared Solutions)
http://www.mswatch.com/ (support program)
Rebif - Manuf: Serono (Also includes novantrone for Progresive MS
http://www.mslifelines.com/ (support program)
Serono offers 'head start' on MS drug access
Under the program, which is only being run in the US, participants will receive up to one year of therapy regardless of income level, with no more than a $50 co-payment required of any patient. Eligible participants are those with relapsing forms of MS who have either been newly prescribed Rebif (interferon beta-1a) or who have restarted the drug after having discontinued for more than 90 days.
Avonex - Manuf: Biogen
http://www.msactivesource.com/ (support program)
Betaseron - Manuf: Berlex (Has Champions of Courage Program (up to $7,000 grant)
http://www.mspathways.com/ (support program)
Berlex is establishing a new Patient Assistance Program (PAP) for Betaseron. Will go into effect
January 1, 2007. You can contact Betaseron Founcation at 1-800
The Rocky Mountain MS Center has an Online Forum where anyone can get answers with MS.
Please click the link below to check it out.
Health Talk Radio
AskDrZ@HealthTalk.com (Ask Health Questions)
http://www2.healthtalk.com/ (Dr. Z's Audios/Videos)
Daily Strength Q & A
United Spinal Org.
Membership in the United Spinal Association is free and open to all individuals who have a spinal cord injury or disorder or who have Multiple Sclerosis or the other diseases listed below and you will also receive their great Action Magazines Free.
Timely, lively, and informative articles and editorials on life with a disability.. Action Online offers articles ranging from lifestyles to research. Get in on the Action! Click here to read it.
Offered through United Spinal Association, this travel agency’s staff has dealt with a variety of accessibility issues that travelers with disabilities encounter, including accessible transportation to and from the airport, stowage of wheelchairs or other mobility equipment on board an aircraft, accessible hotel accommodations, and access to medical equipment.
http://tsangenterprise.com/news77.htm (See examples below)
Take 5 grams of soy lecithin granules daily (store this in the refrigerator and sealed tightly to avoid exposure to oxygen. Lecithin destabilizes with oxygen). Lecithin works with EFA's and other nutrients to produce myelin. (One side effect of lecithin is elevated blood sugars). Lecithin works with EFA's and other nutrients to produce myelin.
Autopsies show that multiple sclerosis patients have significantly less lecithin in the brain, spine and myelin sheath than normal persons. (One side effect of lecithin is elevated blood sugars)
For more experiences on Lecithin see:
Drug Discount Card for Marion County, FL Residents Only
Free at Most Pharmacies and Freedom Plublic Library (can be used with or without insurance)
(additional savings if 3 month supply ordered) Can also be used while traveling
NORD (May help with donut hole too)
http://www.needymeds.com/ (apps. for Drug Companies)
Area 3B Citrus, Hernando, Lake, Marion, and Sumter Counties
Toll Free 1-877-724-2358
Qualified Disorders for Automatic Soc. Sec. Disability Approval
Click here: Appendix 1 to Subpart P
FL Toll Permit Program
In order to receive a no-cost Resident Disabled Person's Hunting and Fishing License applicants must
provide proof of being totally and permanently disabled. Not all disabled persons will meet the criteria
to receive the no-cost license. The license is not a disability accommodation but an economic
accommodation for the segment of the disabled population who typically can least afford to pay for the license.
MS Trust in UK
Another Person's MS Journey
Kristie's MS Video - Anyone with MS Should Relate
Vitamin B3 Protects Brain Cells - Even in Late-State Multiple Sclerosis
Fingolimod Oral MS Pill Phase III - Clinical Trials Underway
Fampridine Phase III - Improves Walking Speed and Leg Strength in MS
Cladribine Oral MS Pill Phase III - FDA Agrees to Fast Review for Pill Being Tested for MS
Company Still Recruiting for Clinical Trial
Cognition and Vegetables
Walking Assist Device with Stride Management System Prototype by Honda (can even help go up stairs)
Walkaide Reimbursement!! - NEW - We do have limited reimbursement with the Walkaide now. It is worth the visit to see if anyone that is a walkaide candidate be properly screened. If the device can help them walk, we can submit and see if it gets approved.
Dr. Ulysses Singleton, DPT, Rehabilitation Specialist, Innovative Neurotronics, Inc., (407) 376-3353 cell, 888-884-6462 (toll free)
512-721-1900 (local) Fax: 512-329-5097
Question? firstname.lastname@example.org or go to web site http://www.walkaide.com/
Senior Home Care in Ocala FL America's Premier Non-Medical Senior Home Care Provider!
Visiting Angels, 953 NE Osceola Avenue, Ocala, FL 34470. Servicing Marion County.
For more information, please contact their home office at 1-800-365-4189.
Home Incare Program - In Home meals, errands, ride to Dr's appts., etc. - most $16/hr -
minimum 4 hrs. if once/week 3 hrs. if more than once a week. Can also do overnights.
http://www.homeincare.com/ - Jim Samuelson (352) 622-6447
Florida Palliative Home Care - Christine Spicochi, LPN
Cell (352) 266-9073, Office (352) 873-0475, Fax (352) 291-5135, Home (352) 694-9430
(Talked about Hyperbaric Chamber/Glyco Nutrients/Home Device for B.P. readings,
Blood sugar readings, Taking Pills, etc. covered by Medicare and most Insurance.
Yoga & Laughter - Diane Howe (813) 935-7538
The Villages Wellness Center - Sharon McClurg, Certified Yoga Instructor (352) 753-6910,
Fax (352) 753-4041 - 1400 US Highway 441N, Suite 810, The Villages, FL 32159
Marion Therapeutic Riding Association (MTRA) is a premier accredited
therapeutic horseback and carriage riding organization for individuals
of all ages challenged by physical, mental or emotional disabilities.
Handicapped Recreation Adaptive Equipment
ASA Adaptive Skiing
New Dimensions Scholarship Program
ASA has established a scholarship program with the objective of increasing support for out-of-state, first-time skiers
and snowboarders. In turn, these new participants will help develop new relationships with various recreational therapists,
service clubs, support groups, and disability organizations to ensure even more participation in our program. ASA believes
this will enhance the lives of an increasing number of people with disabilities by offering a new area of self-fulfillment. The
statements of the overwhelming majority of past scholarship recipients have convinced us that the testimonial of just one person
whose life has been changed by this experience can open the door for many others
Website for Gathering MS Symptom Info and Exchanging Information and Support
Goal is to enable people to share information that can improve the lives of patients diagnosed with
life-changing diseases. To make this happen, we've created a platform for collecting and sharing real
world, outcome-based patient data and are establishing data-sharing partnerships with doctors,
pharmaceutical and medical device companies, research organizations, and non-profits. Contact us if
you're interested in working together to achieve our goals.
Stu's Views and MS Related News
Congressman Clifford Stearns - Working for Florida's Sixth District since 1989
Has local office in Ocala and is an MS Advocate (can sometimes help with Social Security Disability Turndowns (must be after turn-down and before petition to go in front of a judge). Also issues with transportation, or other issues relating to disabilities.
115 S.E. 25th Ave.
Ocala, FL 34471
Elder Law Attorney (Living Wills, Wills, Durable Power of Attorney, Estate Planning, etc.) Was at our Feb 2009 Meeting.
Colleen M. Duris
Florida Bar, Board Certified Elder Law Attorney
500 NE 8th Avenue
Ocala, FL 34470
fax (352) 867-5111
Visiting Angels - Senior Home Care - America's Premier Non-Medical Senior Home Care Provider! in Ocala, FL and surrounding areas
8405 SW 80th St. (OTOW Circle Square Commons Ste. 14)
Ocala FL 34481
Servicing Marion County
Comfort Keepers - Senior Home Care -
Popular Ocala Neurologists: