Marion County Multiple Sclerosis Self-Help Group, Ocala, Florida

Enjoying Life One Day at a Time!

Upcoming Seminars

NSCIA Webinar
A program of United Spinal

Sexuality & Intimacy for Couples with Disabilities
Thu, Feb 14, 2013
3:00 PM - 4:30 PM EST

Please join us for this webinar.
Register for this webinar

Program Overview
Did you ever wonder “if intimacy is so easy, why are so many books about
it”? Or “why does everyone else know exactly what to do and I’m the only
one with questions”? Well, you’re not alone.

This is especially true when you are living with a disability. How do I
express my needs? How can I share my desires with my partner? So
many people find it difficult to talk about with their partner/loved one.


This webinar answers some of those questions and more. Join us for an interesting, informative and entertaining conversation for couples
addressing sexuality, sensuality, intimacy and communication.


Presenter: Eva Margot Kant, LCSW is a speaker, educator and clinician
in private practice. Ms. Kant is a Licensed Clinical Social Worker who
holds a Master’s Degree in Social Work from the Fordham University
Graduate School of Social Service.

Please join us for this informative webinar.

Ziggi Landsman
VP of Online Relations
NSCIA, a program of United Spinal Association




United Spinal Association
75-20 Astoria Blvd.
East Elmhurst, NY 11370
718-803-3782
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 Friday, February 15, 2012, Check in 11:30 a.m., Program 12:00 p.m.  at Carrabba's Italian Grill, 12957 Cortez Blvd., Brooksville, FL  34613.  Choosing a relapsing MS therapy that's right for you.  Derrick S. Robertson, MD, Asst. Professor, University of South Florida, Dept. of Neurology, MS Center.  RSVP (877) 969-1722 or visit event.mslifelines.com/5044.   For directions call (352) 597-9805.  Lunch will be provided
------------------------------------------------------------ 
Saturday, February 16, 2013, Check in at 11:00 a.m., Program starts at 11:30 a.m. at Ocala Hilton, 3600 SW 36th Ave., Ocala (Off Rte. 200).  Therapy/Symptom Management, with Dr. Kim and Susan Dorne, OT.  Lunch will be provided.  RSVP Stuart@msviewsandnews.org or all (954) 684-1683.
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Thursday, February 28, Check in 12:00 p.m., Program 12:30 p.m. at Cuvee' Bistro, 2237 SW 19th Ave. (Easy Street), Ocala.  Relapses vs Pseudo Relapses with Dr. Kim.  Lunch will be provided.  RSVP (877) 219-0410, Program 0801
-------------------------------------------------------------
Friday, March 15, 2012, Check in 11:30 a.m., Program 12:00 p.m. at Carrabba's Italian Grill, 12957 Cortez Blvd., Brooksville, FL 34613. How my MS treatment is Clinically Proven. Derrick S. Robertson, MD, Asst. Professor, University of South Florida, Dept. of Neurology, MS Center. RSVP (877) 969-1722 or visit event.mslifelines.com/5125. For directions call (352) 597-9805.  Lunch will be provided
 
--------------------------------------------------------------

 

There is a seminar called "Take Control of Your MS Relapses" on Tuesday, December 11, 2012 at 6:00 p.m. at the Hilton located at 3600 SW 36th Ave., Ocala off Rte. 200. Dr. Lane Kim,DO will be there. You will need to register by Monday, December 10, 2012 by calling 1-877-219-0410 or go to www.msrelapseprogram.com and refer to Program 0727. You can bring a friend. Refreshments will be provided. 

-------------------------------------------------------

Treatment Strategies and Therapeutic Symptom Management

in Multiple Sclerosis Can Lead to Better Quality of Life

Presented By:

Scott Gold, MD, Neurologist at MIMA

MS Treatment and Symptom strategies

And

Susan Dorne, OT

Therapeutic Symptom Management

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

after the Q&A, there will be discussion of the Mind-Body connection

and prior to the program see the display table sponsors, including an Acupuncture Demo

Date: Saturday June 9, 2012

11:00am - Registration

11:30am – Program Begins

Complimentary Lunch

Location:

Hilton Orlando/Altamonte Springs

350 Northlake Blvd, Altamonte Springs, FL 32701

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

R.S.V.P. Required

To obtain a confirmation number:

RSVP to: stuart@msviewsandnews.org

If you do not have email, call: (954) 684-1683

Space is Limited to the Patient plus (1) Caregiver


-----------------------------------------------------

 
May 17 at Cuvee Bistro on Easy Street (attached to Dr. Kim's office) in Ocala at 12:00 noon.  Lunch will be served.  Dr. Krolczyk from Tampa will be present also talking about Gilenya
 
 Additional RSVP info will be coming.
------------------------------------------------------------
 

"The Treatment and Management of MS Exacerbations"

A live online webinar on
Thursday, February 2, 2012
7 pm - 8 pm Eastern Standard Time

Register for this webinar

Managing the unpredictability of MS is always challenging, especially for individuals with relapsing-remitting MS. When new symptoms appear or existing symptoms become worse (known as exacerbations or flare-ups), successful management often involves accurately defining the relapse and understanding the variety of treatment options to best address the issue.

Join MS expert Dr. Ben Thrower as he offers valuable insights into understanding the signs and symptoms of an MS exacerbation, provides guidance on when to alert your neurologist, and discusses treatment options including steroids and other effective medications.

Register for this webinar by visiting the following link:
support.msassociation.org/exacerbations







 ---------------------------------------------------

New Additions Daily

Please check back often.  

Please contact me at mcmsgroup@aol.com for any other additional seminars, etc.
that you may have heard about that are not listed or for any corrections.

 

MS Therapy Options:  What to Look for in a Therapy - Ocala Hilton, Feb. 10, 2011 from 6:30 p.m. - 8:30 p.m.

MS Therapy Options:

What to Look for in a

Therapy

Thursday, February 10, 2011

Program 6:30 PM - 8:30 PM

Featured Speaker(s)

Angel Chinea, M.D.

Director of Neurology

MS Center of Puerto Rico

Hilton Ocala

3600 SW 36th Avenue

Ocala, FL 34474

352-854-1400

Dinner served



If clicking above buttons doesn't work, just call 352-854-1400
and have the dates and name of seminar to Register

 
Sunday, March 13 - MS Day at the Brevard Zoo
 
Registration opens at 9:30 a.m.
Program begins at 10:00 a.m.
Brunch will be provided
Connie Easterling will be speaking on the "Emotional Side of MS"
Cost for the event is $5.00 for adults and $3.00 for children, scholarships are available.
For reservations, please contact Kevin at (321) 636-0235 or by email at rkkelley@cfl.rr.com
 

 

 

 

Sounds Like a Great Book!!                               NEVER GIVE UP

 

A MUST FOR READ EVERY MS SUFFERER

 

Join Stephen Baron as he shares his true life story involving  30 years battling this mysterious disease, and how he made the impossible possible when challenged by both the psychological and physical obstacles co

 

 

NMSS Strategic Response Survey

The National MS Society wants your Feedback
 
The National MS Society is in the process of gathering information that will help us understand what needs to happen and what needs to change to help people affected by MS keep moving their lives forward. This data will help guide the Society's direction for the next five years.

We want to make sure we hear from you - one of the valuable members of our 60,000 network of MS activists. If you have not yet done so, please take a few minutes to complete a confidential survey by September 2nd. Thank you!

 

MSF Aging with a Physical Disability Survey

Aging with a Physical Disability Survey Study
University of Washington
 Aging Rehabilitation Research and Training Center
Department of Rehabilitation Medicine
Announcing a new study on aging with a disability (muscular dystrophy, multiple sclerosis, post-polio syndrome and spinal cord injury)
PURPOSE
It may be surprising to you, but rehabilitation professionals don’t know much about the natural course of aging with physical disabilities such as muscular dystrophy, multiple sclerosis, post-polio syndrome and spinal cord injury.  It is important to understand how aging impacts your life with a disability, and what to expect long term as a person with a physical disability ages. The most fundamental requirement for increasing our knowledge and developing effective treatments is the availability of reliable, sensitive, and meaningful ways of measuring things like pain, fatigue, mobility, and communication, and their effects on day-to-day functioning.
RESEARCH ACTIVITIES
If you decide to participate in this study, we will ask you to fill out two to four surveys over the course of four years, depending on your age. As long as you are over 18, you are eligible to participate. These surveys will ask you about your experience with pain, fatigue, sleep, participation in daily activities, your social support, and general mood and outlook. The survey will also ask for some basic demographic information, such as your age, gender, and education. The survey will take about 60 minutes to complete. We will mail you the survey and include a postage paid envelope that you can use to return it to us.  Each time we have received your completed survey, you will receive a check for $25 for your time and effort.

Participating in this research is completely voluntary. You may decide not to participate in this study, and you may withdraw from the study at any time.  Your decision to withdraw will not affect your health care in any way. There are no penalties or loss of benefits if you choose not to take part in the study or if you decide to withdraw early.
PARTICIPATE
If you would like to participate, please contact project staff at:

University of Washington
Aging Rehabilitation Research and Training Center
Department of Rehabilitation Medicine
206-221-5641 or 1-866-928-2114
agerrtc@u.washington.edu *
*Please remember that we cannot guarantee the confidentiality of any information sent by email.

Progressive MS: Diagnosis and Future Treatment Options

The National MS Society and
MS LEARN ONLINE present...

Progressive MS: Diagnosis and Future Treatment Options

Today's new Feature Presentations focus on progressive MS.
 
This Feature Presentation will discuss the differences between primary and secondary progressive MS, the role of an MRI in diagnosis, and common characteristics of progressive MS.

Can Progressive MS Be Treated?
This Feature Presentation examines the issues of limited treatment options for people with progressive MS, what is in the pipeline for treatments, and using a team approach to managing the disease.
 
Click here to view the webcasts, or
copy into your browser: If you have a pop-up blocker, you will need to disable it prior to participating in a MS Learn Online webcast.
More to Come!
January 2009 
Managing MS: A Team Approach
Did You See?
Multiple Sclerosis in the Workplace
 
http://visitor.constantcontact.com/email.jsp?m=1101296634593
 

Daily Minute

 
Did you know that every weekday MS Learn Online debuts a new tidbit of information?  Simply go to www.nationalMSsociety.org/mlearnonline and click on the link in the green Daily Minute box.
Relevant Links
 
 
MS Learn Online Archives
Webcasts and podcasts are pre-recorded and may be played at any time.
 
 
This program was funded in part by unrestricted educational grants from Teva Neuroscience and EMD Serono/Pfizer, Inc.
 
 
 
http://rs6.net/tn.jsp?e=001tHEPD54spdMJdB82NU7Mh8_X89vXSbLIIh8LNCR5_UNwhFsGZAIb0dPqQ6vQ-7CC29f2nWfRf_VCRkhaTIRJ4Eqy67ct6zMMf4gIND9yW20=

Betaseron

The Real World of MS

Learn more about multiple sclerosis through on-demand educational programming, sponsored by BETASERON.

http://sbctt.quaero.com/CT00028106NDc0MjMz.HTML?D=2009-01-09

Speaker: Richard E. Popwell, Jr., MD

This month's installment of The Real World of MS webcast "Celebrating 15 Years of BETASERON," takes a look at the history of BETASERON (interferon beta-1b), one of the most effective MS therapies that has been used by tens of thousands of people living with MS. From its launch in 1993 as the first disease modifying therapy approved by the FDA for the treatment of MS, to the introduction in 2002 of a refrigeration-free formulation*, to the most recent innovation in 2008 as the only MS therapy with the thinnest (30-gauge) needle, BETASERON is committed to the well-being of those living with MS.

The host of our webcast, Richard E. Popwell, Jr., MD, practices general neurology at the Colorado Institute of Neuromuscular and Neurological Disorders in Longmont, Colorado.

You will also hear from Brett, a person living with multiple sclerosis who has been on BETASERON since 1996.

"Celebrating 15 Years of BETASERON"

http://sbctt.quaero.com/CT00028107NDc0MjMz.HTML?D=2009-01-09

Best Regards,
Your BETAPLUS Team


* BETASERON is the only immunomodulatory MS therapy that can be stored at room temperature for more than 30 days. If not used immediately after reconstitution, the product should be refrigerated and used within 3 hours.


BETASERON (interferon beta-1b) is indicated for the treatment of relapsing forms of multiple sclerosis to reduce the frequency of clinical exacerbations. Patients with multiple sclerosis in whom efficacy has been demonstrated include patients who have experienced a first clinical episode and have MRI features consistent with multiple sclerosis.

BETASERON News | Safety Information | Prescribing Information | Medication Guide
Terms of Use | Privacy Policy | Unsubscribe

Please do not reply to this e-mail because it is not a monitored e-mail address. If you have any questions, please call BETAPLUS at 1-800-788-1467.

To request medical or product information, or to report an adverse event or product complaint, please call 1-888-842-2937 (1-888-84-BAYER).

BETASERON is a registered trademark and BETAPLUS is a service mark of Bayer HealthCare Pharmaceuticals Inc.

© 2008 Bayer HealthCare Pharmaceuticals Inc.
6 West Belt Parkway | Wayne NJ 07470

Relationship Matters

Relationship Matters:  

A Program for Couples Living with MS

Look Below for Links to the Printable Handouts & Calendars
 
NMSS logo

Participating Couples Have This to Say About Relationship Matters...

Excellent program, thank you for offering it. It has enhanced our marital relationship tremendously (quantity and quality time spent together listening and discussing these different courses). Thank you again.
 
Upcoming
Teleconferences
 
 
Calls on Recording 
To access the calls on recording please dial:
1-800-642-1687 and reference the conference ID#. 
 
Happiness Starts With Me
Available until April 1, 2009
Conference ID: 65202198
 
The Dark Side of Expectations
Available until April 7, 2009
Conference ID: 65204754
 
Focus on the Positive
Available until April 8, 2009
Conference ID: 65202639
 

Handouts, Calendars & Course Catalog

 
 
 
The National Multiple Sclerosis Society
Broadway Station
900 S. Broadway
Suite 200
Denver, Colorado 80209
 
1-800-FIGHT MS
 
(303) 698-6100 ext. 15217
 
 Thank you for your participation! 

Relationship Matters is now offering two online courses: Adapting: Financial Planning for a Life with MS...Together; and Intimacy: Enriching Your Relationship.
To register or learn more about the online courses please contact us at couplesprogram@nmss.org.
 
 Funding for this project was provided by the United States Department of Health and Human Services, Administration for Children and Families, Grant: 90FE0090.  Any opinions, findings and conclusions or recommendations expressed in this material are those of the author (s) and do not necessarily reflect the views of the Department of Health and Human Services, Administration for Children and Families.

NMSS Teleconferences

Introducing Year Long Teleconference Series!
National MS Society
Southeast Chapters
Presents:
Coming
 This Fall & Winter!
 
October 9th
Unlawful Termination of Employment
 
November 13th
Honoring Caregivers: The Art of Caregiving
 
December 11th
Staying Well With MS: Preventative Healthcare
 
Greetings!

Beginning this year in October 2007 and running through September 2008 the Mid Florida Chapter, along with our partners in the Southeast will offer a FREE teleconference on the 2nd Tuesday of every month from 7:30 p.m. - 8:30 p.m. 
 
Join us from the comfort of your home for these toll-free teleconferences.  You can register now for the topics that are of interest to you.   Mark your calendars!

Worried you may forget by registering in advance?  The Mid Florida Chapter will send out email reminders about the call along with any handouts you may need.  Once you register you will recieve the toll-free number to dial in to informative sessions relevant to MS.
 
To Register Call 1-800-344-4867 or email programs.rsvp@flc.nmss.org or visit our website at www.nationalmssociety.org/flc to print the registration card.  Be sure to include the teleconferences you want to be registerd for!
 
Look below for for a complete list of teleconferences!
 
Sincerely,
 

The National MS Society Mid-Florida Chapter
Cut Out to Mark Your Calendars!
 
October 9:      Unlawful Termination
November 13: The Art of Caregiving
December 11: Staying Well With MS
January 8:      Mood, Memory & MS
February 12:   MS & Sexuality
March 11:       MS 101
April 8:          Understanding Social Security Disability
May 13:         Effecting Change: Getting What You Need
June 10:        Changing Face of Relationships
July 8:           Clear Thinking About Alternative Therapies
August 12:     Targeted Research & Clincial Trials
September 9:  Take Command of your Bladder!   
 
 
Don't Forget to Register! 
1-800-344-4867
 
tami & steve

MS Slideshows - View Any Time

MS Slideshows
10 Things You Should Know About MS
In this slideshow, you will find helpful information about what you can expect to experience as MS progresses, information about your treatment options, expert tips on living well with MS and much more.
Watch the slideshow http://ht01.net/health40/c4.php?HEAL/121525901/33936234/H/N/V/http://www2.healthtalk.com/go/multiple-sclerosis/disease-basics

Will You Give Your Child MS?
Do you feel conflicted about the idea of having kids or hold off on parenthood altogether, for fear that you'll pass MS onto your children? Learn more about the role genes play in the development of MS and whether your kids are at risk.
Watch the slideshow http://ht01.net/health40/c4.php?HEAL/121525901/33936235/H/N/V/http://www2.healthtalk.com/go/multiple-sclerosis/slideshow/ms-and-genetics-will-i-give-my-child-ms

Newly Diagnosed - Ongoing Teleconferences - 1st Tuesday 7:00 p.m. - 3rd Tuesday 10:00 p.m. ET

Have you or someone you know been recently diagnosed with MS?

If you are interested in speaking live with a neurologist and a person living successfully with MS, attending a teleconference in the convenience of your home may be right for you. These FREE live teleconferences can give you the opportunity to:

Ask neurologists and people living with MS any questions you may have
Listen to people about their experiences living with MS
Learn about ways to manage your MS

You may be feeling overwhelmed, but you're not alone. Get the information you need now.

These calls will take place in the evenings every first and third Tuesday of each month.

First Tuesday Third Tuesday
7PM Eastern Time 10PM Eastern Time
6PM Central Time 9PM Central Time
5PM Mountain Time 8PM Mountain Time
4PM Pacific Time 7PM Pacific Time


To join the call, dial 877-748-8211 ten minutes before the start time on the first or third Tuesday of the month. When asked for a code, please say "MS Teleconference".

Click here to find more information on how to join this teleconference.

www.msactivesource.com

This program is sponsored by Biogen Idec.

NMSS - A Look Back at MS Learn Online in 2007

The National MS Society and
MS LEARN ONLINE Presents...

A Look Back at MS Learn Online in 2007

This past year MS Learn Online has brought you 25 new webcasts and podcasts.  The topics have ranged from basic understanding of the disease, medical management, and ways one can cope.  Here is a complete recap of MS Learn Online in 2007:  

If you have a pop-up blocker, you will need to disable it prior to participating in a MS Learn Online webcast.

Upcoming Webcasts
January 3
Tips for Making Life Easier with Progressive MS: Help - Asking for, Accepting and Giving Back
 
January 17
Tips for Making Life Easier with Progressive MS: Help - Staying Involved and Connected

NMSS Pre-recorded Web cast - Managing Your Symptoms: Cognitive Dysfunction - Originally aired 8/2/07

The National MS Society and
MS LEARN ONLINE Presents...

Managing Your Symptoms: 
Cognitive Dysfunction

 

Please join us for the second webcast in a three-part series discussing Managing Your Symptoms.  This webcast will focus on:  
  • Memory
  • Tip of the Tongue Syndrome
  • Processing
  • Problem Solving

Click here for webcast, or type into your browser: http://skins.broadbandvideo.com/nmss/event.asp?showid=29362&clipid=29357

If you have a pop-up blocker, you will need to disable it prior to participating in an MS Learn Online webcast.

The speaker for this webcast is:
Nicholas G. LaRocca, Ph.D.
 
Dr. Nicholas G. LaRoccaDr. Nicholas LaRocca is a clinical psychologist who has been working with people who have MS since 1979.  Before coming to work for the National Multiple Sclerosis Society, he was the Director of Research at the Research and Training Center for MS at St. Agnes Hospital, White Plains, New York and Associate Professor of Neurology and Medicine at New York Medical College.  In January, 1997, Dr. LaRocca became Director of Health Care Delivery and Policy Research at the National Multiple Sclerosis Society in New York City.  Dr. LaRocca has led support groups for persons with MS and their spouses and has given innumerable workshops and presentations for both lay and professional audiences.  His research interests include assessment methods, psychological issues, cognitive rehabilitation, and quality of life.  He is the author of a number of scientific papers and book chapters and serves on the editorial boards of  The Journal of Rehabilitation Research & Development,  and Real Living with MS.   In 2006, Dr. LaRocca and Dr. Rosalind Kalb published a new book for people with MS entitled: Multiple Sclerosis: Understanding the Cognitive Challenges.
Relevant Links
 
 
MS Learn Online Archives
Webcasts are pre-recorded and may be played at any time.
 
 
 
Upcoming Webcasts
August 16
Managing Your Symptoms:
Depression
 
http://visitor.constantcontact.com/email.jsp?m=1101296634593
 
 
Funding for this program was provided as an unrestricted educational grant from several National MS Society Chapters.
 
 
 
New Logo

Other Pre-recorded Web casts

Living with MS

Webcasts and Podcasts

MS Learn Online:
The National MS Society's Internet Program

Webcasts are available in the following categories. Podcasts are available where indicated.

MS: The Basic Facts Research
Treatments (drug therapies, alternative medicine) Family Life and Relationships
Symptom Management/ Staying Well Life Planning and Independence
Treating Exacerbations  Español

Progressive MS

Bowel Dysfunction 12 min.

The Facts on MS

13 min.
The Clinical Courses in MS

13 min.

Where Do I Begin?              23 min.

Current Treatments and Options      15 min.
Managing Your Decision                  14 min.

Making It Work For You                    14 nub,

For More Go To:  http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_ms_learn_online